1. What do you understand
by Spastics Society of Sikkim?
Ans. Spastics Society of Sikkim is a Non-Government Organisation
registered under the Govt. of Sikkim (Regtd. No. 951/LR/97) formed
for the welfare of persons with Cerebral Palsy, Mental Retardation,
Autism and Multiple Disabilty.
2. Where is it located?
Ans. Office of the Spastics Society of Sikkim is located at Jeewan
Theeng Marg (Near TNSS School), Development Area, Gangtok, Sikkim
– 737 101 (India).
3. How does it function?
Ans. The Society has members (Annual Members, Life Members, Donor
Members and Corporate Members) who elect 15 Executive Members (Governing
Body) in the Annual General Body Meeting every 03 years as per its
rules and regulations. The day-to-day activities are decided by
the Executive Members.
4. How does the Society implement
its objectives?
Ans. (a) The Society has a Day Care Centre called Special Education
and Rehabilitation Centre (SERC) situated at the office building
of the Spastics Society of Sikkim which provides Special Education,
Physiotherapy and Vocational Training for children with Cerebral
Palsy, Mental Retardation, Autism and Multiple Disability through
Special Educators and Physiotherapist. There is increasing demand
for expanding its services and infrastructure due to increasing
number of beneficiaries.
(b) Awareness generation: The Society organises workshops for Govt.
and Non-Government agencies at various levels from time to time.
It provides training opportunities for Special Educators and Volunteers.
It takes help form electronic and print media to disseminate information
about the rights of the disabled among general public periodically
and also organises awareness campaigns like World Disabled Day Celebration
etc.
© Networking with Govt. and Non-Government Organisations in
and outside the State for sharing information.
(d) Infrastructure Development:
· Working with the vision of developing a resource centre
for capacity building in Gangtok as Institute of
Disability Management.
· Respite Care Centres at District Headquarters and Sub-Divisions
in Sikkim.
· Human Resource Development on Disability Management
5. What are the sources of
its fund?
Ans. It generates fund by collecting donations from – Members
Donors
It receives grant-in-aid from Social Welfare Department, Govt. of
Sikkim.
6. How can one become a member
of the Society?
Ans. Any individual above 18 years of age willing to volunteer to
serve the Persons With Disability may submit a requisition to the
Executive Member/s and fill up the Membership Card after payment
of membership fee as per the category of his/her choice. The person
willing to become a Member should abide by the rules and regulations
of the Society.
7. What is Cerebral Palsy
and Multiple Disability?
Ans. Cerebral Palsy: Cerebral Palsy is a disorder causing problems
with movement and balance. This happens
when there is damage to that part of the brain which controls movement.
A persons thus affected is called Spastic.
Multiple Disability: Combination of more than one disabilities,
like spasticity, mental retardation, hearing, speech
and visual impairment occurring in the same individual due to Cerebral
Palsy is called Multiple Disability.
8. Is a persons with Cerebral
Palsy mad?
Ans. No. It is due to permanent brain damage which is not progressive.
People with Cerebral Palsy can have normal intelligence.
9. Is it a curse?
Ans. No. It is neither a curse, hereditary disorder nor a disease.
It is not infectious. It is the result of Cerebral Hypoxia caused
by metabolic disorder.
10. How can it be detected?
Ans. It can be detected by parents, health personnel/professionals,
teachers and rehabilitation workers when the baby/child fails to
achieve the physical or mental developmental milestones as compared
to other normal children.
11. When to start therapy,
education and rehabilitation services?
Ans. Early detection, appropriate therapy and rehabilitation services
prevent further deterioration of disability and promote capacity
building of the person with disability.
12. Are such services easily
accessible?
Ans. We have made a beginning at the Day Care Centre (Special Education
and Rehabilitation Centre) at Gangtok which needs to be developed
into an Institute of Cerebral Palsy and Disability Management with
Respite Care Centres at the Community Level manned by Special Educators
in the near future. It needs collective effort from all sections
of the society to make it a reality.
|